This will be a quick one… first, in Nate’s words,
1- 23-14 Thursday
Dr. Rothman (my nephrologist) came in this morning to tell us what was going on and why she requested for me to come back to the hospital. Dr. Rothman got my biopsy results back and it is more serious than we thought. The biopsy showed that some of my kidneys are completely unrecoverable but they are going to be working hard to preserve what I have left. She explained that I have a very rare form of IGA Nephology called Rapidly Progressive Glomerulonephritis (RPGN). There are only a handful of cases out there of RPGN and there is not much research for this type of aggressive kidney disease. They do have a couple of procedures that could help including chemo-p-plasma (chemo therapy) and plasmaphoresis (plasma transplant). My doctor has been talking with the top nephrologist in our country and consulting with them to find the best possible solutions. They want to keep me for the next few days to monitor me and see how I react to the daily plasmaphoresis, 3 times a week dialysis, and 1-2 low doses of chemo.
Since then, Nate went to the hospital for treatments… he had an allergic reaction to the plasma treatment so they stopped it mid-stream… that was Thursday night… today they will give him his schedule dialysis and then try the chemo…
This has been quite a roller coaster ride these past few days… we are a bit tired but by no means defeated! We are buoyed by God’s constant presence and your prayers on our behalf. I am reminded of the incredible nature of our physical body to fight off diseases and marvel at how the body is designed to attack foreign substances in the body and note that this is exactly what we are experiencing as well as part of the body of Christ… when the word first went out, the Body rallied and focused prayers (antibodies) on the critical site (my son) and things began to happen… maybe not exactly as we prayed but exactly as God has intended… we trust in the Great Physician in this case, who is the Great Physician and so much more, as we have experienced…
Thanks so much for your prayers and continued “fighting” on our behalf… keep up the faith… God is good and has sustained us in so many ways…
Shalom,
John
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